Showing posts with label Epidermolysis Bullosa. Show all posts
Showing posts with label Epidermolysis Bullosa. Show all posts

Sunday, May 17, 2009

Epidermolysis Bullosa


I had a terrible time learning how to pronounce Epidermolysis Bullosa. With so many asking me about it, figure I had better get it right. I am always encountering something I wasn’t aware of on a home inspection. You would think, at my age, and with my background, there wouldn’t be anything new I would find in something that is old. But there are.

I often must explain my terminology. I assume that people know what efflorescence is or that I wouldn’t need to explain a hose-bib anti siphon valve or draft/combustion/make up air to a seasoned Realtor, but I do. You would think that everyone would understand positive drainage, but they don’t. Yet, it is why so many basements leak and even seasoned builders simply do not understand the principle.

I am very fond of a particular word “exacerbated”. Don’t know what it means, look it up. I love the way pronouncing it rolls off of my tongue. It’s a great word for a home inspector and I use it once in a while and wonder if the reader has a clue what it means. For example, the lack of positive drainage along the front wall of this home exacerbates basement leakage. Sounds like a professor, doesn't it?

Epidermolysis Bullosa is a serious condition. I hope that you never need to learn to pronounce it, let alone discover what it is. I would however appreciate if you would take a moment and learn how you can help me defeat it by simply clicking here. Please spread the word about what you discover.

Wednesday, May 6, 2009

Have you purchased one of Jonah's magnets?


Click on Jonah's magnet on the left to learn about Jonah and why he and his parents need your support. Help increase awareness about EB, help support Jonah and fund a cure by purchasing one of Jonah's magnets. Please share this information with others and help sell magnets.


The proceeds will be used for Jonah's care and 10% will be donated to the Dystrophic Epidermolysis Bullosa Research Association of America to fund the search for a cure.

Wednesday, April 22, 2009

Jonah on front page of WS Journal again!


If you are following baby Jonah, he was on the front page of the Winston-Salem Journal for the second time on Monday. (For those of you who haven’t been paying attention, this is my sister’s grandchild) The article was titled “TLC Required: Rare skin disorder causes baby’s skin to be extra fragile”, check it out at:

http://www2.journalnow.com/content/2009/apr/20/tlc-required-rare-skin-disorder-causes-babys-skin-/news/