Epidermolysis Bullosa. Articles I wrote about him in 2009 are still some of the top postings read on this blog. I thought that you might enjoy an update. The ideal update has become available with a series of videos made by Brenner Children's Hospital of Jonah's mother telling their story. Get a BIG box of Kleenex and click on this link: http://www.brennerchildrens.org/video/patient/jonah/
You will find access to my past posting on this subject under "Topics" on the right side of this blog.
Visit Jonah's mothers blog at: http://patriceandmattwilliams.blogspot.com/